Cargando…
Development of a pediatric differentiated thyroid carcinoma registry within the EuRRECa project: rationale and protocol
BACKGROUND: Although differentiated thyroid carcinoma (DTC) is the most frequent endocrine pediatric cancer, it is rare in childhood and adolescence. While tumor persistence and recurrence are not uncommon, mortality remains extremely low. Complications of treatment are however reported in up to 48%...
Autores principales: | Clement, S C, Visser, W E, Lebbink, C A, Albano, D, Claahsen-van der Grinten, H L, Czarniecka, A, Dias, R P, Dierselhuis, M P, Dzivite-Krisane, I, Elisei, R, Garcia-Burillo, A, Izatt, L, Kanaka-Gantenbein, C, Krude, H, Lamartina, L, Lorenz, K, Luster, M, Navardauskaitė, R, Negre Busó, M, Newbold, K, Peeters, R P, Pellegriti, G, Piccardo, A, Priego, A L, Redlich, A, de Sanctis, L, Sobrinho-Simões, M, van Trotsenburg, A S P, Verburg, F A, Vriens, M, Links, T P, Ahmed, S F, van Santen, H M |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Bioscientifica Ltd
2023
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9986407/ https://www.ncbi.nlm.nih.gov/pubmed/37931414 http://dx.doi.org/10.1530/EC-22-0306 |
Ejemplares similares
-
Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project
por: Ali, S R, et al.
Publicado: (2023) -
Supporting international networks through platforms for standardised data collection—the European Registries for Rare Endocrine Conditions (EuRRECa) model
por: Ali, S. R., et al.
Publicado: (2021) -
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes
por: Ali, Salma R., et al.
Publicado: (2020) -
SUN-070 European Registries for Rare Endocrine Conditions (EuRRECa): Results from the Platform for E-reporting of Rare Endocrine Conditions (e-REC)
por: Ali, Salma R, et al.
Publicado: (2020) -
2022 European Thyroid Association Guidelines for the management of pediatric thyroid nodules and differentiated thyroid carcinoma
por: Lebbink, Chantal A, et al.
Publicado: (2022)