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Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model
OBJECTIVE: Palliative care (PC) can improve the quality of life of Parkinson’s disease (PD) patients and their carers. However, the impact of PC services on patients with PD remains unclear. This research was conducted to identify the barriers and facilitators influencing PC services for patients wi...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9990289/ https://www.ncbi.nlm.nih.gov/pubmed/36879235 http://dx.doi.org/10.1186/s12913-023-09203-2 |
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author | Chen, Yiping Zhang, Ru Lou, Yan Li, Wei Yang, Hui |
author_facet | Chen, Yiping Zhang, Ru Lou, Yan Li, Wei Yang, Hui |
author_sort | Chen, Yiping |
collection | PubMed |
description | OBJECTIVE: Palliative care (PC) can improve the quality of life of Parkinson’s disease (PD) patients and their carers. However, the impact of PC services on patients with PD remains unclear. This research was conducted to identify the barriers and facilitators influencing PC services for patients with PD based on the Social Ecological Model (SEM) framework. METHODS: This research was conducted through semi-structured interviews, employing SEM to organize themes and identify potential solutions across multiple levels. RESULTS: A total of 29 interviewees (5 PD clinicians, 7 PD registered nurses, 8 patients, 5 caregivers, and 4 policy makers) completed the interviews. Facilitators and barriers were identified according to the levels of the SEM. Several facilitators were identified, i.e., (1) individual level: the critical needs among PD patients and their relatives and the desire for PC knowledge among health professionals; (2) interpersonal level: social support; (3) organizational level: the investments towards systematization of PC; and nurses are the bridge between patients and doctors; (4) community level: the convenience of community services; and hospital-community-family-based services; (5) culture and policy level: existing policy. CONCLUSION: The social-ecological model proposed in this study helps illuminate the complex and multilevel factors that may influence PC delivery to PD patients. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12913-023-09203-2. |
format | Online Article Text |
id | pubmed-9990289 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2023 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-99902892023-03-08 Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model Chen, Yiping Zhang, Ru Lou, Yan Li, Wei Yang, Hui BMC Health Serv Res Research OBJECTIVE: Palliative care (PC) can improve the quality of life of Parkinson’s disease (PD) patients and their carers. However, the impact of PC services on patients with PD remains unclear. This research was conducted to identify the barriers and facilitators influencing PC services for patients with PD based on the Social Ecological Model (SEM) framework. METHODS: This research was conducted through semi-structured interviews, employing SEM to organize themes and identify potential solutions across multiple levels. RESULTS: A total of 29 interviewees (5 PD clinicians, 7 PD registered nurses, 8 patients, 5 caregivers, and 4 policy makers) completed the interviews. Facilitators and barriers were identified according to the levels of the SEM. Several facilitators were identified, i.e., (1) individual level: the critical needs among PD patients and their relatives and the desire for PC knowledge among health professionals; (2) interpersonal level: social support; (3) organizational level: the investments towards systematization of PC; and nurses are the bridge between patients and doctors; (4) community level: the convenience of community services; and hospital-community-family-based services; (5) culture and policy level: existing policy. CONCLUSION: The social-ecological model proposed in this study helps illuminate the complex and multilevel factors that may influence PC delivery to PD patients. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12913-023-09203-2. BioMed Central 2023-03-06 /pmc/articles/PMC9990289/ /pubmed/36879235 http://dx.doi.org/10.1186/s12913-023-09203-2 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Chen, Yiping Zhang, Ru Lou, Yan Li, Wei Yang, Hui Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model |
title | Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model |
title_full | Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model |
title_fullStr | Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model |
title_full_unstemmed | Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model |
title_short | Facilitators and barriers to the delivery of palliative care to patients with Parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model |
title_sort | facilitators and barriers to the delivery of palliative care to patients with parkinson’s disease: a qualitative study of the perceptions and experiences of stakeholders using the socio-ecological model |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9990289/ https://www.ncbi.nlm.nih.gov/pubmed/36879235 http://dx.doi.org/10.1186/s12913-023-09203-2 |
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