Development of a distributed international patient data registry for hairy cell leukemia

Hairy cell leukemia (HCL) is a rare lymphoproliferative disorder, comprising only 2% of all leukemias. The Hairy Cell Leukemia Foundation (HCLF) has developed a patient data registry to enable investigators to better study the clinical features, treatment outcomes, and complications of patients with...

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Autores principales: Andritsos, Leslie A., Anghelina, Mirela, Neal, Jasmine, Blachly, James S., Mathur, Puneet, Lele, Omkar, Dearden, Claire, Iyengar, Sunil, Cross, Matthew, Zent, Clive S., Rogers, Kerry A., Epperla, Narendranath, Lozanski, Gerard, Oakes, Christopher C., Kraut, Eric, Ruppert, Amy S., Zhao, Qiuhong, Bhat, Seema A., Forconi, Francesco, Banerji, Versha, Handunnetti, Sasanka, Tam, Constantine S., Seymour, John F., Else, Monica, Kreitman, Robert J., Saven, Alan, Call, Timothy, Parikh, Sameer A., Ravandi, Farhad, Johnston, James B., Tiacci, Enrico, Troussard, Xavier, Tallman, Martin S., Dietrich, Sascha, Tadmor, Tamar, Gozzetti, Alessandro, Zinzani, Pier Luigi, Robak, Tadeusz, Quest, Graeme, Demeter, Judit, Rai, Kanti, Fernandez, Soledad A., Grever, Michael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9990910/
https://www.ncbi.nlm.nih.gov/pubmed/36070610
http://dx.doi.org/10.1080/10428194.2022.2109157

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