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Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team

OBJECTIVE: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. METHOD: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professionals from three...

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Autores principales: Bonfim, Tassia de Arruda, Giacon-Arruda, Bianca Cristina Ciccone, Galera, Sueli Aparecida Frari, Teston, Elen Ferrraz, Nascimento, Francisneide Gomes Pego Do, Marcheti, Maria Angélica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9990997/
https://www.ncbi.nlm.nih.gov/pubmed/36888790
http://dx.doi.org/10.1590/1518-8345.5694.3780
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author Bonfim, Tassia de Arruda
Giacon-Arruda, Bianca Cristina Ciccone
Galera, Sueli Aparecida Frari
Teston, Elen Ferrraz
Nascimento, Francisneide Gomes Pego Do
Marcheti, Maria Angélica
author_facet Bonfim, Tassia de Arruda
Giacon-Arruda, Bianca Cristina Ciccone
Galera, Sueli Aparecida Frari
Teston, Elen Ferrraz
Nascimento, Francisneide Gomes Pego Do
Marcheti, Maria Angélica
author_sort Bonfim, Tassia de Arruda
collection PubMed
description OBJECTIVE: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. METHOD: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professionals from three multidisciplinary teams from the Health Care Network of a municipality in the state of Mato Grosso do Sul, Brazil. The data were collected through two focus groups with each team, organized with the support of the Atlas.ti 8 Qualitative Data Analysis(®) software and submitted to Thematic Content Analysis. RESULTS: the findings show actions centered on specific situations, especially on the demands and needs arising from the child’s care and atypical behavior. Influencing factors for family care, such as work overload and little professional experience, show the weakness of multiprofessional care and the invisibility of the family as a care unit. CONCLUSION: the need is highlighted to review functioning of the network for the multiprofessional care of children and their families and how such network is organized. It is recommended to offer permanent education actions that contribute to the qualification of multiprofessional teams in the care of families of children in the autism spectrum.
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spelling pubmed-99909972023-03-08 Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team Bonfim, Tassia de Arruda Giacon-Arruda, Bianca Cristina Ciccone Galera, Sueli Aparecida Frari Teston, Elen Ferrraz Nascimento, Francisneide Gomes Pego Do Marcheti, Maria Angélica Rev Lat Am Enfermagem Original Article OBJECTIVE: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. METHOD: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professionals from three multidisciplinary teams from the Health Care Network of a municipality in the state of Mato Grosso do Sul, Brazil. The data were collected through two focus groups with each team, organized with the support of the Atlas.ti 8 Qualitative Data Analysis(®) software and submitted to Thematic Content Analysis. RESULTS: the findings show actions centered on specific situations, especially on the demands and needs arising from the child’s care and atypical behavior. Influencing factors for family care, such as work overload and little professional experience, show the weakness of multiprofessional care and the invisibility of the family as a care unit. CONCLUSION: the need is highlighted to review functioning of the network for the multiprofessional care of children and their families and how such network is organized. It is recommended to offer permanent education actions that contribute to the qualification of multiprofessional teams in the care of families of children in the autism spectrum. Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2023-03-06 /pmc/articles/PMC9990997/ /pubmed/36888790 http://dx.doi.org/10.1590/1518-8345.5694.3780 Text en https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License
spellingShingle Original Article
Bonfim, Tassia de Arruda
Giacon-Arruda, Bianca Cristina Ciccone
Galera, Sueli Aparecida Frari
Teston, Elen Ferrraz
Nascimento, Francisneide Gomes Pego Do
Marcheti, Maria Angélica
Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_full Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_fullStr Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_full_unstemmed Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_short Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_sort assistance to families of children with autism spectrum disorders: perceptions of the multiprofessional team
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9990997/
https://www.ncbi.nlm.nih.gov/pubmed/36888790
http://dx.doi.org/10.1590/1518-8345.5694.3780
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