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“I can’t make all this work.” End of life care provision in natural disasters: a qualitative study

BACKGROUND: Natural disasters are becoming more frequent and severe and profoundly impact the end-of-life care experience, including service provision. There is a paucity of research examining healthcare workers’ experiences in responding to care demands when disasters strike. This research aimed to...

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Autores principales: Kelly, Marguerite, Mitchell, Imogen, Walker, Iain, Mears, Jane, Scholz, Brett
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9999053/
https://www.ncbi.nlm.nih.gov/pubmed/36899357
http://dx.doi.org/10.1186/s12904-023-01137-0
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author Kelly, Marguerite
Mitchell, Imogen
Walker, Iain
Mears, Jane
Scholz, Brett
author_facet Kelly, Marguerite
Mitchell, Imogen
Walker, Iain
Mears, Jane
Scholz, Brett
author_sort Kelly, Marguerite
collection PubMed
description BACKGROUND: Natural disasters are becoming more frequent and severe and profoundly impact the end-of-life care experience, including service provision. There is a paucity of research examining healthcare workers’ experiences in responding to care demands when disasters strike. This research aimed to fill this gap by exploring end-of-life care providers’ perceptions of the impact of natural disasters on end-of-life care. METHODS: Between Feb 2021-June 2021 ten in-depth semi-structured interviews were conducted with healthcare professionals providing end-of-life care during recent natural disasters, COVID-19, and/or fires and floods. Interviews were audio-recorded, transcribed, and analysed using a hybrid inductive and deductive thematic approach. RESULTS: The overarching theme from the healthcare workers’ accounts was of being unable to provide effective compassionate and quality care - “I can’t make all this work.” They spoke of the considerable burdens the system imposed on them, of being overextended and overwhelmed, having their roles overturned, and losing the human element of care for those at end-of-life. CONCLUSION: There is urgent need to pioneer effective solutions to minimise the distress of healthcare professionals in delivering end-of-life care in disaster contexts, and to improve the experience of those dying. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12904-023-01137-0.
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spelling pubmed-99990532023-03-10 “I can’t make all this work.” End of life care provision in natural disasters: a qualitative study Kelly, Marguerite Mitchell, Imogen Walker, Iain Mears, Jane Scholz, Brett BMC Palliat Care Research BACKGROUND: Natural disasters are becoming more frequent and severe and profoundly impact the end-of-life care experience, including service provision. There is a paucity of research examining healthcare workers’ experiences in responding to care demands when disasters strike. This research aimed to fill this gap by exploring end-of-life care providers’ perceptions of the impact of natural disasters on end-of-life care. METHODS: Between Feb 2021-June 2021 ten in-depth semi-structured interviews were conducted with healthcare professionals providing end-of-life care during recent natural disasters, COVID-19, and/or fires and floods. Interviews were audio-recorded, transcribed, and analysed using a hybrid inductive and deductive thematic approach. RESULTS: The overarching theme from the healthcare workers’ accounts was of being unable to provide effective compassionate and quality care - “I can’t make all this work.” They spoke of the considerable burdens the system imposed on them, of being overextended and overwhelmed, having their roles overturned, and losing the human element of care for those at end-of-life. CONCLUSION: There is urgent need to pioneer effective solutions to minimise the distress of healthcare professionals in delivering end-of-life care in disaster contexts, and to improve the experience of those dying. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12904-023-01137-0. BioMed Central 2023-03-10 /pmc/articles/PMC9999053/ /pubmed/36899357 http://dx.doi.org/10.1186/s12904-023-01137-0 Text en © The Author(s) 2023 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Kelly, Marguerite
Mitchell, Imogen
Walker, Iain
Mears, Jane
Scholz, Brett
“I can’t make all this work.” End of life care provision in natural disasters: a qualitative study
title “I can’t make all this work.” End of life care provision in natural disasters: a qualitative study
title_full “I can’t make all this work.” End of life care provision in natural disasters: a qualitative study
title_fullStr “I can’t make all this work.” End of life care provision in natural disasters: a qualitative study
title_full_unstemmed “I can’t make all this work.” End of life care provision in natural disasters: a qualitative study
title_short “I can’t make all this work.” End of life care provision in natural disasters: a qualitative study
title_sort “i can’t make all this work.” end of life care provision in natural disasters: a qualitative study
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9999053/
https://www.ncbi.nlm.nih.gov/pubmed/36899357
http://dx.doi.org/10.1186/s12904-023-01137-0
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