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The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study

OBJECTIVES: People with advanced chronic obstructive pulmonary disease (COPD) are frequently hospitalized, reporting high physical, psychological and spiritual suffering. Existing research focused on discrete aspects of hospitalization, such as care or treatment, yet lacks a complete picture of the...

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Autores principales: Bakthavatsalu, Barathi, Walshe, Catherine, Simpson, Jane
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9999271/
https://www.ncbi.nlm.nih.gov/pubmed/35118898
http://dx.doi.org/10.1177/17423953211073580
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author Bakthavatsalu, Barathi
Walshe, Catherine
Simpson, Jane
author_facet Bakthavatsalu, Barathi
Walshe, Catherine
Simpson, Jane
author_sort Bakthavatsalu, Barathi
collection PubMed
description OBJECTIVES: People with advanced chronic obstructive pulmonary disease (COPD) are frequently hospitalized, reporting high physical, psychological and spiritual suffering. Existing research focused on discrete aspects of hospitalization, such as care or treatment, yet lacks a complete picture of the phenomenon. The aim of this study is to understand the lived experience of hospitalization in people with advanced COPD. METHODS: A qualitative, descriptive phenomenological approach was employed to study the phenomenon of hospitalization for people with advanced COPD. Unstructured interviews were conducted during hospitalization at a tertiary care hospital in India, in 2017, audio-recorded, and then transcribed. Giorgi's descriptive phenomenological analysis method guided the analysis. RESULTS: Fifteen people with advanced COPD participated. Emergency admissions were common because of acute breathlessness, leading to repeated hospitalizations. Hospitalization gave a sense of safety but, despite this, people preferred to avoid hospitalization. Care influenced trust in hospitalization and both shaped the experience of hospitalization. Multi-dimensional suffering was central to the experience and was described across physical, psychological and spiritual domains. DISCUSSION: Hospitalization was identified largely as a negative experience due to the perception of continued suffering. Integrating palliative care into the routine care of people with advanced COPD may enable improvements in care.
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spelling pubmed-99992712023-03-11 The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study Bakthavatsalu, Barathi Walshe, Catherine Simpson, Jane Chronic Illn Articles OBJECTIVES: People with advanced chronic obstructive pulmonary disease (COPD) are frequently hospitalized, reporting high physical, psychological and spiritual suffering. Existing research focused on discrete aspects of hospitalization, such as care or treatment, yet lacks a complete picture of the phenomenon. The aim of this study is to understand the lived experience of hospitalization in people with advanced COPD. METHODS: A qualitative, descriptive phenomenological approach was employed to study the phenomenon of hospitalization for people with advanced COPD. Unstructured interviews were conducted during hospitalization at a tertiary care hospital in India, in 2017, audio-recorded, and then transcribed. Giorgi's descriptive phenomenological analysis method guided the analysis. RESULTS: Fifteen people with advanced COPD participated. Emergency admissions were common because of acute breathlessness, leading to repeated hospitalizations. Hospitalization gave a sense of safety but, despite this, people preferred to avoid hospitalization. Care influenced trust in hospitalization and both shaped the experience of hospitalization. Multi-dimensional suffering was central to the experience and was described across physical, psychological and spiritual domains. DISCUSSION: Hospitalization was identified largely as a negative experience due to the perception of continued suffering. Integrating palliative care into the routine care of people with advanced COPD may enable improvements in care. SAGE Publications 2022-02-04 2023-06 /pmc/articles/PMC9999271/ /pubmed/35118898 http://dx.doi.org/10.1177/17423953211073580 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Articles
Bakthavatsalu, Barathi
Walshe, Catherine
Simpson, Jane
The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
title The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
title_full The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
title_fullStr The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
title_full_unstemmed The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
title_short The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
title_sort experience of hospitalization in people with advanced chronic obstructive pulmonary disease: a qualitative, phenomenological study
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9999271/
https://www.ncbi.nlm.nih.gov/pubmed/35118898
http://dx.doi.org/10.1177/17423953211073580
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