por
Post, Annemarie E. M.,
Klockgether, Thomas,
Landwehrmeyer, G. Bernhard,
Pandolfo, Massimo,
Arnesen, Astri,
Reinhard, Carola,
Graessner, Holm
Publicado 2021
“…We distributed a survey on research priorities to ERN-RND members, both patient representatives and healthcare professionals, asking them to prioritize five research themes for rare neurological diseases on a scale ranging from 1 (most important) to 5 (least important). A follow-up e-
mail interview was conducted with patient representatives and professionals to assess potential reasons for differences in opinions between these two groups. …”
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