Mostrando 1 - 17 Resultados de 17 Para Buscar '"legal"', tiempo de consulta: 0.20s Limitar resultados
  1. 1
    “…These ‘points to consider' should be borne in mind by genomic research organizations when negotiating legal arrangements to store genomic data on a large commercial cloud service provider's servers. …”
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    Genomic cloud computing: legal and ethical points to consider
  2. 2
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    Editorial: COVID-19 pandemics: Ethical, legal and social issues
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    “…However, unclear regulatory compliance requirements applicable to these models raise significant legal uncertainty and new questions about the regulation of medical devices. …”
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    Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context
  4. 4
    “…In setting up a data access policy to share controlled access data from the McGill Epigenomics Mapping Centre (EMC), an International Human Epigenome Consortium (IHEC) partner project, we encountered ethical and legal challenges that are likely to be relevant to other researchers sharing data, especially from Canadian projects. …”
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    Evolving data access policy: The Canadian context
  5. 5
    “…While there is some degree of similarity between the nature and content of these areas and the abundant literature on ethical, legal and social issues in genetics, the potential implications of epigenetics ought not be conflated with the latter. …”
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    Epigenetics, ethics, law and society: A multidisciplinary review of descriptive, instrumental, dialectical and reflexive analyses
  6. 6
    “…There has been much investment in research on the ethical, legal and social issues (ELSI) associated with genetic and genomic research. …”
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    Harm, hype and evidence: ELSI research and policy guidance
  7. 7
    “…Over the past decade, bioethicists, legal scholars and social scientists have started to investigate the potential implications of epigenetic research and technologies on medicine and society. …”
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    Researcher perspectives on ethics considerations in epigenetics: an international survey
  8. 8
    “…The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data cannot move for legal or technical reasons. We recommend a federated approach to connect national genomics initiatives into a global network and precision medicine resource.…”
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    International federation of genomic medicine databases using GA4GH standards
  9. 9
    por Kim, Hannah, Kim, So Yoon, Joly, Yann
    Publicado 2018
    “…With rapid developments in genomic and digital technologies, genomic data sharing has become a key issue for the achievement of precision medicine in South Korea. The legal and administrative framework for data sharing and protection in this country is currently under intense scrutiny from national and international stakeholders. …”
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    South Korea: in the midst of a privacy reform centered on data sharing
  10. 10
    por So, Derek, Joly, Yann
    Publicado 2013
    “…Our critical assessment of the legal, economic and ethical aspects of Myriad’s practices over this period allows the identification of the company’s more effective business models. …”
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    Commercial Opportunities and Ethical Pitfalls in Personalized Medicine: A Myriad of Reasons to Revisit the Myriad Genetics Saga
  11. 11
    “…Through dealing with these topics at a high level, the model may be adapted to local legal and ethical requirements while still pursuing its ultimate goal: the creation of a research infrastructure that supports transparent, strong, and open science.…”
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    Modeling consent in the time of COVID-19
  12. 12
    “…Having reviewed the current legal, social, and ethical issues on the use of genomic information in the context of life insurance, the Expert Group identified four main questions: (1) Have recent developments in genomics and related sciences changed the contours of the genetics and life insurance debate? …”
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    Life insurance: genomic stratification and risk classification
  13. 13
    “…Members of the International Human Epigenome Consortium (IHEC) Bioethics Workgroup considered the potential ethical, legal, and social issues (ELSI) involved in returning epigenetic research results and incidental findings in order to produce a set of ‘Points-to-consider’ (P-t-C) for the epigenetics research community. …”
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    Points-to-consider on the return of results in epigenetic research
  14. 14
    “…Indeed, PCM raises a number of technical, organizational, ethical, legal, social, and economic challenges that have to be taken into account in the development of an appropriate health policy framework. …”
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    Integrating precision cancer medicine into healthcare—policy, practice, and research challenges
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    “…There is a need to further educate and inform the Canadian public about GD and the legal protections that exist to prevent it. Enhanced knowledge could facilitate the implementation and uptake of risk prediction informed by genetic factors, such as the risk-stratified approach to breast cancer screening that includes risk levels.…”
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    Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Health Data
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    “…The paper concludes that privacy risks associated with cell-based research and interventions should be addressed through evidence-based policy reforms that account for both well-established legal and ethical norms and current knowledge about actual or anticipated harms. …”
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    Policy recommendations for addressing privacy challenges associated with cell-based research and interventions
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    “…As a disease-oriented biobank based on high-quality biosamples and clinical data of hospitalized and non-hospitalized SARS-CoV-2 PCR positive and negative individuals. The BQC19 follows a legal and ethical management framework approved by local health authorities. …”
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    The Biobanque québécoise de la COVID-19 (BQC19)—A cohort to prospectively study the clinical and biological determinants of COVID-19 clinical trajectories
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