por
Garbade, Sven F.,
Ederer, Viviane,
Burgard, Peter,
Wendel, Udo,
Spiekerkoetter, Ute,
Haas, Dorothea,
Grünert, Sarah C.
Publicado 2021
“…RESULTS: In this multi-centre study we assessed the impact of GSD I on adult daily life in 34 GSD I patients (27 GSD Ia, 7 GSD Ib) between 17 and 54 years (median 26 years) using a self-designed questionnaire that specifically focused on different aspects of daily life, such as job situation, social life,
sports, travelling, composition of the household, night-time and day-time dietary management and disease monitoring as well as the patient’s attitude towards the disease. …”
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