-
161por Kondylakis, Haridimos, Kalokyri, Varvara, Sfakianakis, Stelios, Marias, Kostas, Tsiknakis, Manolis, Jimenez-Pastor, Ana, Camacho-Ramos, Eduardo, Blanquer, Ignacio, Segrelles, J. Damian, López-Huguet, Sergio, Barelle, Caroline, Kogut-Czarkowska, Magdalena, Tsakou, Gianna, Siopis, Nikolaos, Sakellariou, Zisis, Bizopoulos, Paschalis, Drossou, Vicky, Lalas, Antonios, Votis, Konstantinos, Mallol, Pedro, Marti-Bonmati, Luis, Alberich, Leonor Cerdá, Seymour, Karine, Boucher, Samuel, Ciarrocchi, Esther, Fromont, Lauren, Rambla, Jordi, Harms, Alexander, Gutierrez, Andrea, Starmans, Martijn P. A., Prior, Fred, Gelpi, Josep Ll., Lekadir, Karim“…. • Main infrastructures adopted either collect centrally anonymized data or enable access to pseudonymized distributed data. • Developing a common data model for storing all relevant information is a challenge. • Trust of data providers in data sharing initiatives is essential. • An online European Union meta-tool-repository is a necessity minimizing effort duplication for the various projects in the area. …”
Publicado 2023
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
162“…Confidentiality was ensured, among other things, by means of a complex pseudonymization procedure by an independent trust center. …”
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
163por Hörbrand, Franziska, Schuch, Florian, Bleß, Hans-Holger, Messinger, David, Bretthauer, Bork, Killian, Peter“…MATERIAL AND METHODS: Pseudonymized claims data of the Bavarian Association of Statutory Health Insurance Physicians from 2014 to 2019 as well as a paper and pencil survey of patients and rheumatologists formed the data basis of the study. …”
Publicado 2022
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
164“…Three types of data were collected: (1) quantitative data at baseline and after the SMS intervention and the waitlist from the clients, (2) qualitative data from semistructured interviews with the fitness consultants, and (3) pseudonymized texting conversations between the fitness consultants and clients. …”
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
165por von Schnurbein, Julia, Adams, Claire, Akinci, Baris, Ceccarini, Giovanni, D’Apice, Maria Rosaria, Gambineri, Alessandra, Hennekam, Raoul C. M., Jeru, Isabelle, Lattanzi, Giovanna, Miehle, Konstanze, Nagel, Gabriele, Novelli, Giuseppe, Santini, Ferruccio, Santos Silva, Ermelinda, Savage, David B., Sbraccia, Paolo, Schaaf, Jannik, Sorkina, Ekaterina, Tanteles, George, Vantyghem, Marie-Christine, Vatier, Camille, Vigouroux, Corinne, Vorona, Elena, Araújo-Vilar, David, Wabitsch, Martin“…The platform complies with the new General Data Protection Regulation (EU) 2016/679 by ensuring patient pseudonymization, informational separation of powers, secure data storage and security of communication, user authentication, person specific access to data, and recording of access granted to any data. …”
Publicado 2020
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
166por Crossfield, Samantha S. R., Zucker, Kieran, Baxter, Paul, Wright, Penny, Fistein, Jon, Markham, Alex F., Birkin, Mark, Glaser, Adam W., Hall, Geoff“…METHODS: We developed a data flow protocol that generates pseudonymous datasets that can be reversibly linked, or irreversibly linked to form an anonymous research dataset. …”
Publicado 2022
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
167por Grant, Yasmin, Thiruchelvam, Paul T. R., Kovacevic, Lana, Mossialos, Elias, Al-Mufti, Ragheed, Hogben, Katy, Hadjiminas, Dimitri J., Leff, Daniel R.“…METHOD: A prospective single-centre observational study was conducted at an academic teaching centre for breast cancer surgery in the UK. Pseudonymized data for clinicopathological variables and procedural care information, including the type of initial breast-conserving surgery and subsequent reoperation(s), were extracted from the electronic patient record. …”
Publicado 2022
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
168por Wan, Cheng, Read, Stephanie, Wu, Honghan, Lu, Shan, Zhang, Xin, Wild, Sarah H., Liu, Yun“…The derivation cohort was identified from a pseudonymized research extract of data from the First Affiliated Hospital of Nanjing Medical University (NMU). …”
Publicado 2022
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
169por Hoyer-Kuhn, Heike, Huebner, Angela, Richter-Unruh, Anette, Bettendorf, Markus, Rohrer, Tilman, Kapelari, Klaus, Riedl, Stefan, Mohnike, Klaus, Dörr, Helmuth-Günther, Roehl, Friedrich-Wilhelm, Fink, Katharina, Holl, Reinhard W, Woelfle, Joachim“…METHODS: A custom-made electronic health record software is used at the participating centers. Pseudonymized data are transferred for central analysis. …”
Publicado 2021
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
170“…Despite limitations in generalizability from pseudonymous online posts, this examination of reports of naturalistic cannabis use in relation to opioid use identified withdrawal symptom management as a common motivation. …”
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
171“…Only 20% of records reported ethics approval by an Institutional Review Board, with several including measures to protect participants, for example, using pseudonyms. CONCLUSIONS: This unique review mapped the diverse range of mourning-related topics that have been investigated using SM data and highlighted the variability in approaches to data analysis. …”
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
172por Speiser, Dorothee, Heibges, Maren, Besch, Laura, Hilger, Caren, Keinert, Marie, Klein, Katharina, Rauwolf, Gudrun, Schmid, Christine, Schulz-Niethammer, Sven, Stegen, Steffi, Westfal, Viola, Witzel, Isabell, Zang, Benedikt, Kendel, Friederike, Feufel, Markus A“…By operationalizing these premises, we formulate 5 design principles that, we suggest, are specific enough to develop a digital tool (eg, iKNOW), yet wide-ranging enough to inform the development of counseling tools for personalized medicine more generally: (1) digital counseling tools should implement the current standard of care (eg, based on guidelines); (2) digital counseling tools should help to both standardize and personalize the counseling process (eg, by enabling the preference-sensitive selection of counseling contents from a common information base); (3) digital counseling tools should make complex information easy to access both cognitively (eg, by using evidenced-based risk communication formats) and technically (eg, by means of responsive design for various devices); (4) digital counseling tools should respect the counselee’s data privacy rights (eg, through strict pseudonymization and opt-in consent); and (5) digital counseling tools should be systematically and iteratively evaluated with the users in mind (eg, using formative prototype testing to ensure a user-centric design and a summative multicenter, randomized controlled trial). …”
Publicado 2023
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
173por Stöver, T., Plontke, S. K., Guntinas-Lichius, O., Welkoborsky, H-J., Zahnert, T., Delank, K. W., Deitmer, T., Esser, D., Dietz, A., Wienke, A., Loth, A., Dazert, S.“…Since January 2022, it has been possible for participating hospitals to enter pseudonymized data into the DCIR. To date, 75 hospitals in Germany have contractually agreed to participate in the registry. …”
Publicado 2023
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
174por Bobicev, Victoria, Sokolova, Marina, El Emam, Khaled, Jafer, Yasser, Dewar, Brian, Jonker, Elizabeth, Matwin, Stan“…They can do this by using fake identities, nicknames, or pseudonyms that cannot readily be traced back to them. …”
Publicado 2013
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
175por Wolak, Stefanie, Scheunchen, Mandy, Holzer, Katharina, Busch, Mirjam, Trumpf, Esra, Zielke, Andreas“…METHODS/DESIGN: This clinical observational (minimal interventional clinical trial) trial is a multicentre, prospective, randomized superiority trial with an adaptive design. Datasets will be pseudonymized for analysis. Patients will be randomly allocated (1:1) to the intervention and the control groups. …”
Publicado 2016
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
176por Magunia, Harry, Lederer, Simone, Verbuecheln, Raphael, Gilot, Bryant Joseph, Koeppen, Michael, Haeberle, Helene A., Mirakaj, Valbona, Hofmann, Pascal, Marx, Gernot, Bickenbach, Johannes, Nohe, Boris, Lay, Michael, Spies, Claudia, Edel, Andreas, Schiefenhövel, Fridtjof, Rahmel, Tim, Putensen, Christian, Sellmann, Timur, Koch, Thea, Brandenburger, Timo, Kindgen-Milles, Detlef, Brenner, Thorsten, Berger, Marc, Zacharowski, Kai, Adam, Elisabeth, Posch, Matthias, Moerer, Onnen, Scheer, Christian S., Sedding, Daniel, Weigand, Markus A., Fichtner, Falk, Nau, Carla, Prätsch, Florian, Wiesmann, Thomas, Koch, Christian, Schneider, Gerhard, Lahmer, Tobias, Straub, Andreas, Meiser, Andreas, Weiss, Manfred, Jungwirth, Bettina, Wappler, Frank, Meybohm, Patrick, Herrmann, Johannes, Malek, Nisar, Kohlbacher, Oliver, Biergans, Stephanie, Rosenberger, Peter“…METHODS: A Germany-wide electronic registry was established to pseudonymously collect admission, therapeutic and discharge information of SARS-CoV-2 ICU patients retrospectively and prospectively. …”
Publicado 2021
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
177por Stöckigt, Dr. med. Barbara, Kirschbaum, Barbara, Carstensen, Dr. med. Martin, Witt, Dr. med. Claudia M., Brinkhaus, Dr. med. Benno“…The interviews were digitally recorded, pseudonymized, transcribed, and then deductively and inductively analyzed according to Qualitative Content Analysis using MAXQDA(®) software. …”
Publicado 2021
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
178por Hentschel, Leopold, Wellesen, André, Krause, Luisa Christin, von Havranek, Maria, Kramer, Michael, Hornemann, Beate, Bornhäuser, Martin, Schuler, Ulrich, Schütte, Katharina“…Data will be progressed pseudonymized. Multivariable regression models will help to identify predictors of the primary endpoint “unplanned hospital admissions”. …”
Publicado 2022
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
179por Irangani, Lasandha, Prasanna, Indika Ruwan, Gunarathne, Sajaan Praveena, Shanthapriya, Sandaru Hasaranga, Wickramasinghe, Nuwan Darshana, Agampodi, Suneth Buddhika, Agampodi, Thilini Chanchala“…METHODS: We conducted social autopsies for 15/18 maternal deaths (in two consecutive years during the past decade) in district A (pseudonymized). In-depth interviews of 43 respondents and observations were recorded in the same field sites. …”
Publicado 2022
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto -
180por Yeates, Peter, Maluf, Adriano, Kinston, Ruth, Cope, Natalie, McCray, Gareth, Cullen, Kathy, O’Neill, Vikki, Cole, Aidan, Goodfellow, Rhian, Vallender, Rebecca, Chung, Ching-Wa, McKinley, Robert K, Fuller, Richard, Wong, Geoff“…We will uphold principles of informed consent, the right to withdraw, confidentiality with pseudonymity and strict data security. The study has received ethical approval from Keele University Research Ethics Committee. …”
Publicado 2022
Enlace del recurso
Enlace del recurso
Enlace del recurso
Online Artículo Texto