“…Muscular dystrophies (MDs) are degenerative diseases which may led to marked functional impairment and reduced life expectancy. Being caregivers of a loved one with MD may be both a rewarding and a demanding experience that may have relevant impact on the quality of life of the whole family. …”
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“…Decreased social networks are common in old age after major life events such as retirement, loss of loved ones, and declining health (Shankar et al., 2013). …”
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“…(1) Background: As the literature analysis shows, cancer patients experience a variety of different needs. Each patient reacts differently to the hardships of the illness. …”
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“…Secondly, families want to experience that staff are competent and of good will. Difficult feelings families may have, such as guilt or loneliness, and dealing with the deterioration of the loved one puts families in a vulnerable position. …”
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“…On the one hand, a pandemic brings biological dangers that, in turn, make all individuals—loved ones, too—into potential threats of biological contamination. …”
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“…Furthermore, caregivers describe three self-management strategies that let them manage their own stress and keep up the care for their loved ones: looking for distractions, getting rest, and discussing their feelings and experiences. …”
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“…:  “From beginning to end, and with laugh after laugh, I en joyed every single word of this remarkable book. Phipps is a hell of a good writer, and the kind of physics teacher that I would have loved as a young student. …”
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“…In both countries, carers feel left without post-diagnostic support; information on the progression of dementia is lacking and some people do not even have a specific diagnosis; encouraging and providing training for carers best manage some of the symptoms is imperative; preparation for end of life care and support carers after the death of their loved ones remains highly needed; strengthening services and qualification of health professionals, also creating protocols to guide dementia-related services represent a common challenge to overcome. …”
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“…Pet owners living alone were significantly more likely than pet owners living with others to report that their pet helps them cope with physical or emotional symptoms (72% vs. 58%), feel loved (94% vs. 85%), stick to a routine (76% vs. 60%), take their mind off pain (43% vs. 32%), and have a sense of purpose (82% vs. 72%; all p<.05). …”
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“…Caregivers expressed feelings of powerlessness and inadequacy, and 21% of them reported a declining social life while providing care to a loved one with depression. …”
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“…Extended family, neighbours and friends feel a basic human obligation to care for the older people in their environment. …”
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“…Caregivers had difficulty communicating with their loved ones, and communication itself sometimes became a source of conflict. …”
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“…The aim of this study was to assess the content applicability for three frequently used PRO instruments from the perspective of patients with EBV(+) PTLD. METHODS: A moderated focus group comprising adult patients with EBV(+) PTLD was conducted using a concept confirmation and an open-ended concept elicitation approach. …”
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“…Theme two offered insights into the mental health and wellbeing of HCPs, while many experienced feelings of fear, sadness and hypervigilance, all also demonstrated a marked resilience. …”
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“…These understandings are expected to enhance our observations of how people express their feelings over the loss of their loved ones and help mental health professionals develop their therapeutic protocols to treat the coronavirus disease 2019 (COVID-19)-affected population.…”
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“…The video depicted stories regarding organ donation after death from various viewpoints, including from the loved ones of a deceased person who died waiting for a transplant; from the loved ones of a deceased person whose organs were donated upon death; and, from those who were currently waiting for a transplant. …”
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“…The IESE was conducted in interviews on online platforms and took a minimum of 60 min. The students’ anxiety levels were measured again one week after the IESE. …”
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“…PURPOSE: Mindfulness, defined as awareness of the moment while acknowledging and accepting one's feelings, thoughts, and sensations, is the aim of mindfulness meditation. …”
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“…Thus, the care of dependent adults with ID should be viewed on a broad human spectrum, that is, in consideration of the unique situation of those who remain under permanent care provided by family members, those who live alone, and those whose loved ones try to combine caregiving with their own private lives. …”
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“…Intensive Care Unit (ICU) support is provided with the aim of maintaining the vital functions, reducing mortality and morbidity in patients with a severe critical illness.(1) Despite having newly developed technologies and improvement in care, the death rate in the intensive care unit remains high, ranging between 20-35%.(1) The care that people receive at the end of their lives has a profound impact not only upon them but also upon their families and carers. …”
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