Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs

Diagnosing a child by newborn screening with classic congenital adrenal hyperplasia due to 21-hydroxylase deficiency (CAH) causes multiple challenges for the affected parents and the whole family. We aimed to examine the health-related Quality of Life (HrQoL), coping, and needs of parents caring for...

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Detalles Bibliográficos
Autores principales: Rautmann, Laura, Witt, Stefanie, Theiding, Christoph, Odenwald, Birgit, Nennstiel-Ratzel, Uta, Dörr, Helmuth-Günther, Quitmann, Julia Hannah
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10002056/
https://www.ncbi.nlm.nih.gov/pubmed/36901502
http://dx.doi.org/10.3390/ijerph20054493

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10002056/
https://www.ncbi.nlm.nih.gov/pubmed/36901502
http://dx.doi.org/10.3390/ijerph20054493

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