Adjustment to disease and quality of life in people with vascular Ehlers-Danlos and Loeys-Dietz syndromes: A mixed-method study

BACKGROUND: Vascular Ehlers-Danlos (vEDS) and Loeys-Dietz syndromes (LDS) are hereditary disorders of connective tissue having severe vascular complications (HDCTv) which lead to an increased risk of premature death. Little is known about the impact of the disease in patient’s daily life. METHOD: Si...

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Detalles Bibliográficos
Autores principales: Baeza-Velasco, Carolina, Rodriguez, Nuria, Parra, Laura, Gutiérrez-Rosado, Teresa
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Psychology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10011476/
https://www.ncbi.nlm.nih.gov/pubmed/36925590
http://dx.doi.org/10.3389/fpsyg.2023.1019863

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10011476/
https://www.ncbi.nlm.nih.gov/pubmed/36925590
http://dx.doi.org/10.3389/fpsyg.2023.1019863

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