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Self‐reported quality of life in symptomatic and asymptomatic women with X‐linked adrenoleukodystrophy

BACKGROUND: Up to 80% of women with X‐linked adrenoleukodystrophy (X‐ALD) develop symptoms of myelopathy and peripheral neuropathy during their lifetime. The study's objective was to compare symptomatic versus asymptomatic women with X‐ALD regarding their physical and mental well‐being and qual...

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Detalles Bibliográficos
Autores principales: Schäfer, Lisa, Roicke, Hannes, Bergner, Christa‐Caroline, Köhler, Wolfgang
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10013936/
https://www.ncbi.nlm.nih.gov/pubmed/36748403
http://dx.doi.org/10.1002/brb3.2878