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Rarecare: A policy perspective on the burden of rare diseases on caregivers in Latin America

In Latin America (LA), 40–50 million people live with rare diseases (RDs) that require constant monitoring, care, and attention. Caregivers help them with their basic life activities and medication administration, which they would otherwise be unable to perform. Family caregivers complement healthca...

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Detalles Bibliográficos
Autores principales: Dias, Ariadne Guimarães, Daher, Antoine, Barrera Ortiz, Lucy, Carreño-Moreno, Sonia, Hafez H, Sylvia R., Jansen, Angela Marie, Rico-Restrepo, Mariana, Chaparro-Diaz, Lorena
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10017724/
https://www.ncbi.nlm.nih.gov/pubmed/36935700
http://dx.doi.org/10.3389/fpubh.2023.1127713