Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences

To prevent or mitigate chronic illness burden, people with cystic fibrosis (pwCF) and their family caregivers need primary (generalist-level) palliative care from the time of diagnosis forward. We used qualitative methods to explore their preferences about a screening-and-triage model (“Improving Li...

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Detalles Bibliográficos
Autores principales: Basile, Melissa J, Dhingra, Lara, DiFiglia, Stephanie, Polo, Jennifer, Portenoy, Russell, Wang, Janice, Walker, Patricia, Middour-Oxler, Brandi, Linnemann, Rachel W, Kier, Catherine, Friedman, Deborah, Berdella, Maria, Abdullah, Robert, Yonker, Lael M, Markovitz, Martha, Hadjiliadis, Denis, Shiffman, Melissa, Fischer, Francine, Pollinger, Sophie, Hardcastle, Margot, Chaudhary, Nivedita, Georgiopoulos, Anna M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2023
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10021085/
https://www.ncbi.nlm.nih.gov/pubmed/36936380
http://dx.doi.org/10.1177/23743735231161486

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10021085/
https://www.ncbi.nlm.nih.gov/pubmed/36936380
http://dx.doi.org/10.1177/23743735231161486

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