So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience

Patient registries fulfill a number of key roles for clinicians, researchers, non-profit organizations, payers, and policy makers. They can help the field understand the natural history of a condition, determine the effectiveness of interventions, measure safety, and audit the quality of care provid...

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Detalles Bibliográficos
Autores principales: Wicks, Paul, Wahlstrom-Edwards, Lindsey, Fillingham, Sam, Downing, Andrea, Davies, Elin Haf
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Practical Application
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10031688/
https://www.ncbi.nlm.nih.gov/pubmed/36947286
http://dx.doi.org/10.1007/s40271-023-00619-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10031688/
https://www.ncbi.nlm.nih.gov/pubmed/36947286
http://dx.doi.org/10.1007/s40271-023-00619-w

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