Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations

BACKGROUND: Rare diseases where prognosis is poor provide limited scope for patient and public involvement (PPI). One such disease is mesothelioma, a cancer of the lung pleura or of the peritoneum caused by exposure to asbestos, where PPI is poorly documented. We undertook to explore how PPI could b...

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Detalles Bibliográficos
Autores principales: Marcu, Afrodita, McGregor, Fiona, Egan, Bernadette, Hill, Kate, Cook, Tim, Arber, Anne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10039679/
https://www.ncbi.nlm.nih.gov/pubmed/36966347
http://dx.doi.org/10.1186/s40900-023-00426-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10039679/
https://www.ncbi.nlm.nih.gov/pubmed/36966347
http://dx.doi.org/10.1186/s40900-023-00426-5

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