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Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations
BACKGROUND: Rare diseases where prognosis is poor provide limited scope for patient and public involvement (PPI). One such disease is mesothelioma, a cancer of the lung pleura or of the peritoneum caused by exposure to asbestos, where PPI is poorly documented. We undertook to explore how PPI could b...
Autores principales: | Marcu, Afrodita, McGregor, Fiona, Egan, Bernadette, Hill, Kate, Cook, Tim, Arber, Anne |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10039679/ https://www.ncbi.nlm.nih.gov/pubmed/36966347 http://dx.doi.org/10.1186/s40900-023-00426-5 |
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