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A survey of United States adult privacy perspectives and willingness to share real-world data

OBJECTIVE: Real-world data privacy is a complex yet underexplored topic. To date, few studies have reported adult perspectives around real-world data privacy and willingness to share real-world data with researchers. METHODS: Relevant survey items were identified in the literature, adapted and pilot...

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Detalles Bibliográficos
Autores principales: Hendricks-Sturrup, Rachele M., Lu, Christine Y.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10052457/
https://www.ncbi.nlm.nih.gov/pubmed/37008612
http://dx.doi.org/10.1017/cts.2023.4