Maßnahmen für einen optimalen Zugang von Kindern mit seltenen Erkrankungen und ihrer Familien zur psychosozialen Versorgung

BACKGROUND: The diagnosis and treatment of rare diseases in childhood can affect the quality of life and mental health of the entire family. The psychosocial challenges are significant for those affected and are often compounded by a lack of appropriate support services. RESEARCH QUESTION: This arti...

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Detalles Bibliográficos
Autores principales: Witt, Stefanie, Kristensen, Kaja, Wiegand-Grefe, Silke, Quitmann, Julia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Medizin 2023
Materias:
Seltene Erkrankungen
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10054192/
https://www.ncbi.nlm.nih.gov/pubmed/36988654
http://dx.doi.org/10.1007/s00108-023-01496-z

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10054192/
https://www.ncbi.nlm.nih.gov/pubmed/36988654
http://dx.doi.org/10.1007/s00108-023-01496-z

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