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Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public

BACKGROUND: Understanding public attitudes to genomic data sharing is widely seen as key in shaping effective governance. However, empirical research in this area often fails to capture the contextual nuances of diverse sharing practices and regulatory concerns encountered in real-world genomic data...

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Detalles Bibliográficos
Autores principales: Warren, Vanessa, Critchley, Christine, McWhirter, Rebekah, Walshe, Jarrod, Nicol, Dianne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10068139/
https://www.ncbi.nlm.nih.gov/pubmed/37005651
http://dx.doi.org/10.1186/s12920-023-01452-8