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Content validation and psychometric evaluation of the Angioedema Quality of Life Questionnaire for hereditary angioedema

BACKGROUND: There is considerable burden of illness in hereditary angioedema (HAE). However, instruments to assess health-related quality of life (HRQoL) in HAE are limited. The Angioedema Quality of Life Questionnaire (AE-QoL) was developed to measure HRQoL in patients with recurrent angioedema; th...

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Detalles Bibliográficos
Autores principales: Vanya, Magdalena, Watt, Maureen, Shahraz, Saeid, Kosmas, Charlotte E., Rhoten, Stephanie, Costa-Cabral, Sara, Mendivil, Joan, Devercelli, Giovanna, Weller, Karsten
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10070575/
https://www.ncbi.nlm.nih.gov/pubmed/37012445
http://dx.doi.org/10.1186/s41687-023-00576-w