Participation in a national diagnostic research study: assessing the patient experience

INTRODUCTION: The Undiagnosed Diseases Network (UDN), a clinical research study funded by the National Institutes of Health, aims to provide answers for patients with undiagnosed conditions and generate knowledge about underlying disease mechanisms. UDN evaluations involve collaboration between clin...

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Detalles Bibliográficos
Autores principales: Rosenfeld, Lindsay E., LeBlanc, Kimberly, Nagy, Anna, Ego, Braeden K., McCray, Alexa T.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10084693/
https://www.ncbi.nlm.nih.gov/pubmed/37032333
http://dx.doi.org/10.1186/s13023-023-02695-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10084693/
https://www.ncbi.nlm.nih.gov/pubmed/37032333
http://dx.doi.org/10.1186/s13023-023-02695-5

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