Shared decision-making and the caregiver experience in tuberous sclerosis complex: results from a UK survey

BACKGROUND: Tuberous sclerosis complex (TSC) is a rare genetic condition commonly accompanied by neurological and neuropsychological disorders, resulting in a high burden of illness for individuals and a substantial impact on their caregivers. Due to the diversity and complexity of clinical manifest...

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Detalles Bibliográficos
Autores principales: Skrobanski, Hanna, Vyas, Kishan, Bowditch, Sally, Hubig, Lena, Dziadulewicz, Edward, Fish, Louise, Takhar, Pooja, Lo, Siu Hing
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10088777/
https://www.ncbi.nlm.nih.gov/pubmed/37041611
http://dx.doi.org/10.1186/s13023-023-02677-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10088777/
https://www.ncbi.nlm.nih.gov/pubmed/37041611
http://dx.doi.org/10.1186/s13023-023-02677-7

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