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Shared decision-making and the caregiver experience in tuberous sclerosis complex: results from a UK survey

BACKGROUND: Tuberous sclerosis complex (TSC) is a rare genetic condition commonly accompanied by neurological and neuropsychological disorders, resulting in a high burden of illness for individuals and a substantial impact on their caregivers. Due to the diversity and complexity of clinical manifest...

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Detalles Bibliográficos
Autores principales:	Skrobanski, Hanna, Vyas, Kishan, Bowditch, Sally, Hubig, Lena, Dziadulewicz, Edward, Fish, Louise, Takhar, Pooja, Lo, Siu Hing
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10088777/ https://www.ncbi.nlm.nih.gov/pubmed/37041611 http://dx.doi.org/10.1186/s13023-023-02677-7

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