How do patients and other members of the public engage with the orphan drug development? A narrative qualitative synthesis

BACKGROUND: The diversity of patient experiences of orphan drug development has until recently been overlooked, with the existing literature reporting the experience of some patients and not others. The current evidence base (the best available current research) is dominated by quantitative surveys...

Descripción completa

Detalles Bibliográficos
Autores principales: Frost, Julia, Hall, Abi, Taylor, Emily, Lines, Sarah, Mandizha, Jessica, Pope, Catherine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10108537/
https://www.ncbi.nlm.nih.gov/pubmed/37069597
http://dx.doi.org/10.1186/s13023-023-02682-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10108537/
https://www.ncbi.nlm.nih.gov/pubmed/37069597
http://dx.doi.org/10.1186/s13023-023-02682-w

Ejemplares similares