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How do patients and other members of the public engage with the orphan drug development? A narrative qualitative synthesis
BACKGROUND: The diversity of patient experiences of orphan drug development has until recently been overlooked, with the existing literature reporting the experience of some patients and not others. The current evidence base (the best available current research) is dominated by quantitative surveys...
| Autores principales: | , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2023
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10108537/ https://www.ncbi.nlm.nih.gov/pubmed/37069597 http://dx.doi.org/10.1186/s13023-023-02682-w |