P106 Where is the care in healthcare? Mother perspectives’ of caring for a child with narcolepsy

INTRODUCTION: When caring for a child with a chronic illness, primary caregivers become care coordinators, system navigators, and illness experts. There is limited research on the challenges faced by family/carers of a child with narcolepsy. METHODS: Twenty participants who self-identified as a fami...

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Detalles Bibliográficos
Autores principales: Schokman, A, Cheung, J, Klinner, C, Milton, A, Naehrig, D, Thornton, N, Bin, Y, Kairaitis, K, Glozier, N
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Poster Presentations
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10109389/
http://dx.doi.org/10.1093/sleepadvances/zpac029.176

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10109389/
http://dx.doi.org/10.1093/sleepadvances/zpac029.176

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