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P106 Where is the care in healthcare? Mother perspectives’ of caring for a child with narcolepsy
INTRODUCTION: When caring for a child with a chronic illness, primary caregivers become care coordinators, system navigators, and illness experts. There is limited research on the challenges faced by family/carers of a child with narcolepsy. METHODS: Twenty participants who self-identified as a fami...
| Autores principales: | , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Oxford University Press
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10109389/ http://dx.doi.org/10.1093/sleepadvances/zpac029.176 |