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323 Perceived Stress and Access to Care in Parents of Children Living a Diagnostic Odyssey in Puerto Rico

OBJECTIVES/GOALS: Diagnostic odyssey is the time it can take to a patient for receiving a diagnosis. Diagnostic process in rare diseases can be complex due to the heterogeneity of symptoms and lack of access to care. We aim to evaluate the association between diagnostic odyssey, perceived stress, an...

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Detalles Bibliográficos
Autores principales: Albino, Elinette M, Martinez, Karen, Carlo, Simon, Chapel-Crespo, Cristel, Ortiz, Antonio, Santiago-Cornier, Alberto, Velez-Bartolomei, Frances, Buxo, Carmen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10129774/
http://dx.doi.org/10.1017/cts.2023.373