Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives

BACKGROUND: Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare pediatric conditions often associated with severe morbidities. Delays in diagnosis are common, increasing the risk for permanent damage and worse outcomes. This study explored caregiver perspectives on barriers the...

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Detalles Bibliográficos
Autores principales: Stubbs, Leigh A., Ferry, Andrew M., Guffey, Danielle, Loccke, Christina, Wade, Erin Moriarty, Pour, Pamela, Ardalan, Kaveh, Chira, Peter, Ganske, Ingrid M., Glaser, Daniel, Higgins, Gloria, Luca, Nadia, Moore, Katharine F., Sivaraman, Vidya, Stewart, Katie, Vasquez-Canizares, Natalia, Hunt, Raegan D., Maricevich, Renata S., Torok, Kathryn S., Li, Suzanne C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10131373/
https://www.ncbi.nlm.nih.gov/pubmed/37098622
http://dx.doi.org/10.1186/s12969-023-00819-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10131373/
https://www.ncbi.nlm.nih.gov/pubmed/37098622
http://dx.doi.org/10.1186/s12969-023-00819-6

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