Co-constructing effective collective intelligence networks in rare diseases: a mixed method approach to identify the parameters that matter for patients, professionals and policy-makers, piloted in Cyprus

BACKGROUND: Rare diseases are a particular field of public health that is characterized by scattered, often insufficient knowledge and infrastructure. The scarcity of specialized knowledge often forces clinicians and patients to an incomplete picture of the diseases and their associated risks. Effec...

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Detalles Bibliográficos
Autores principales: Antoniadou, Victoria, Hadjipanayis, Adamos
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10142407/
https://www.ncbi.nlm.nih.gov/pubmed/37118739
http://dx.doi.org/10.1186/s13023-023-02672-y

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10142407/
https://www.ncbi.nlm.nih.gov/pubmed/37118739
http://dx.doi.org/10.1186/s13023-023-02672-y

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