Engaging Adolescents and Young Adults in Decisions About Return of Genomic Research Results: a mixed-methods longitudinal clinical trial protocol

BACKGROUND: To protect minors’ future autonomy, professional organizations have historically discouraged returning predictive adult-onset genetic test results and carrier status to children. Recent clinical guidance diverges from this norm, suggesting that when minors have genomic sequencing perform...

Descripción completa

Detalles Bibliográficos
Autores principales: Blumling, Amy, McGowan, Michelle, Prows, Cynthia, Childers-Buschle, Kristin, Martin, Lisa, Lynch, John, Dufendach, Kevin, Lipstein, Ellen, Kovacic, Melinda Butsch, Brinkman, Bill, Myers, Melanie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: American Journal Experts 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10168476/
https://www.ncbi.nlm.nih.gov/pubmed/37162875
http://dx.doi.org/10.21203/rs.3.rs-2819191/v1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10168476/
https://www.ncbi.nlm.nih.gov/pubmed/37162875
http://dx.doi.org/10.21203/rs.3.rs-2819191/v1

Ejemplares similares