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Engaging Adolescents and Young Adults in Decisions About Return of Genomic Research Results: a mixed-methods longitudinal clinical trial protocol

BACKGROUND: To protect minors’ future autonomy, professional organizations have historically discouraged returning predictive adult-onset genetic test results and carrier status to children. Recent clinical guidance diverges from this norm, suggesting that when minors have genomic sequencing perform...

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Detalles Bibliográficos
Autores principales:	Blumling, Amy, McGowan, Michelle, Prows, Cynthia, Childers-Buschle, Kristin, Martin, Lisa, Lynch, John, Dufendach, Kevin, Lipstein, Ellen, Kovacic, Melinda Butsch, Brinkman, Bill, Myers, Melanie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	American Journal Experts 2023
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10168476/ https://www.ncbi.nlm.nih.gov/pubmed/37162875 http://dx.doi.org/10.21203/rs.3.rs-2819191/v1

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