Evaluation of an educational conference for persons affected by hereditary frontotemporal degeneration and amyotrophic lateral sclerosis

OBJECTIVE: There are limited studies exploring the support and education needs of individuals at-risk for or diagnosed with hereditary frontotemporal degeneration (FTD) and/or amyotrophic lateral sclerosis (ALS). This study evaluated a novel conference for this population to assess conference effica...

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Detalles Bibliográficos
Autores principales: Dratch, Laynie, Mu, Weiyi, Wood, Elisabeth McCarty, Morgan, Brianna, Massimo, Lauren, Clyburn, Cynthia, Bardakjian, Tanya, Grossman, Murray, Irwin, David J., Cousins, Katheryn A.Q.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2022
Materias:
Articles from Special issue on Communication in Genomic and Precision Medicine; Edited by Gemme Campbell-Salome
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10194235/
https://www.ncbi.nlm.nih.gov/pubmed/37214502
http://dx.doi.org/10.1016/j.pecinn.2022.100108

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10194235/
https://www.ncbi.nlm.nih.gov/pubmed/37214502
http://dx.doi.org/10.1016/j.pecinn.2022.100108

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