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Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies
OBJECTIVE: To understand parents' of children with developmental and epileptic encephalopathies needs and preferences for psychological resources. METHODS: Using a person-based approach, a multidisciplinary panel of clinician and researchers (n = 9) hosted a priority-setting workshop to 1) unde...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10194388/ https://www.ncbi.nlm.nih.gov/pubmed/37364015 http://dx.doi.org/10.1016/j.pecinn.2021.100014 |