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Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies

OBJECTIVE: To understand parents' of children with developmental and epileptic encephalopathies needs and preferences for psychological resources. METHODS: Using a person-based approach, a multidisciplinary panel of clinician and researchers (n = 9) hosted a priority-setting workshop to 1) unde...

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Detalles Bibliográficos
Autores principales:	Nevin, Suzanne M., Wakefield, Claire E., Dadich, Ann, LeMarne, Fleur, Macintosh, Rebecca, Beavis, Erin, Sachdev, Rani, Bye, Ann, Nunn, Kenneth, Palmer, Elizabeth E.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Elsevier 2021
Materias:	Full length article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10194388/ https://www.ncbi.nlm.nih.gov/pubmed/37364015 http://dx.doi.org/10.1016/j.pecinn.2021.100014

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