Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

BACKGROUND: Self-reported health data from children with life-limiting conditions is rarely collected. To improve acceptability and feasibility of child and family-centred outcome measures for children, they need to be designed in a way that reflects preferences, priorities and abilities. OBJECTIVES...

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Detalles Bibliográficos
Autores principales: Coombes, Lucy, Harðardóttir, Daney, Braybrook, Debbie, Roach, Anna, Scott, Hannah, Bristowe, Katherine, Ellis-Smith, Clare, Downing, Julia, Bluebond-Langner, Myra, Fraser, Lorna K., Murtagh, Fliss E. M., Harding, Richard
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Original Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10205035/
https://www.ncbi.nlm.nih.gov/pubmed/37221441
http://dx.doi.org/10.1007/s40271-023-00627-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10205035/
https://www.ncbi.nlm.nih.gov/pubmed/37221441
http://dx.doi.org/10.1007/s40271-023-00627-w

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