Evaluation of the quality of patient involvement in a patient-led analysis of the lived experience of a rare disease

BACKGROUND: Patients themselves are best placed to provide insights on the lived experience and to lead the analysis of such insights to bring the patient voice into peer-reviewed literature. In doing so, they can meet the authorship criteria for subsequent research publications. It is important to...

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Detalles Bibliográficos
Autores principales: Lobban, Dawn, Oliver, Jacqui, Davio, Kelly, Seddik, Kenza, Porkess, Veronica
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Comment
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10214587/
https://www.ncbi.nlm.nih.gov/pubmed/37231525
http://dx.doi.org/10.1186/s40900-023-00445-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10214587/
https://www.ncbi.nlm.nih.gov/pubmed/37231525
http://dx.doi.org/10.1186/s40900-023-00445-2

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