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Evaluation of the quality of patient involvement in a patient-led analysis of the lived experience of a rare disease

BACKGROUND: Patients themselves are best placed to provide insights on the lived experience and to lead the analysis of such insights to bring the patient voice into peer-reviewed literature. In doing so, they can meet the authorship criteria for subsequent research publications. It is important to...

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Detalles Bibliográficos
Autores principales:	Lobban, Dawn, Oliver, Jacqui, Davio, Kelly, Seddik, Kenza, Porkess, Veronica
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2023
Materias:	Comment
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10214587/ https://www.ncbi.nlm.nih.gov/pubmed/37231525 http://dx.doi.org/10.1186/s40900-023-00445-2

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