Framing the Family: A Qualitative Exploration of Factors That Shape Family-Level Experience of Pediatric Genomic Sequencing

Families of children with rare and undiagnosed conditions face many psychosocial and logistical challenges that may affect their approach to decisions about their child’s care and their family’s well-being. As genomic sequencing (GS) is increasingly incorporated into pediatric diagnostic workups, as...

Descripción completa

Detalles Bibliográficos
Autores principales: Smith, Hadley Stevens, Bonkowski, Emily S., Hickingbotham, Madison R., Deloge, Raymond Belanger, Pereira, Stacey
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2023
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10217651/
https://www.ncbi.nlm.nih.gov/pubmed/37238322
http://dx.doi.org/10.3390/children10050774

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10217651/
https://www.ncbi.nlm.nih.gov/pubmed/37238322
http://dx.doi.org/10.3390/children10050774

Ejemplares similares