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Common data model for sickle cell disease surveillance: considerations and implications

OBJECTIVE: Population-level data on sickle cell disease (SCD) are sparse in the United States. The Centers for Disease Control and Prevention (CDC) is addressing the need for SCD surveillance through state-level Sickle Cell Data Collection Programs (SCDC). The SCDC developed a pilot common informati...

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Detalles Bibliográficos
Autores principales: Smeltzer, Matthew P, Reeves, Sarah L, Cooper, William O, Attell, Brandon K, Strouse, John J, Takemoto, Clifford M, Kanter, Julie, Latta, Krista, Plaxco, Allison P, Davis, Robert L, Hatch, Daniel, Reyes, Camila, Dombkowski, Kevin, Snyder, Angela, Paulukonis, Susan, Singh, Ashima, Kayle, Mariam
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10224800/
https://www.ncbi.nlm.nih.gov/pubmed/37252051
http://dx.doi.org/10.1093/jamiaopen/ooad036