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Common data model for sickle cell disease surveillance: considerations and implications
OBJECTIVE: Population-level data on sickle cell disease (SCD) are sparse in the United States. The Centers for Disease Control and Prevention (CDC) is addressing the need for SCD surveillance through state-level Sickle Cell Data Collection Programs (SCDC). The SCDC developed a pilot common informati...
Autores principales: | Smeltzer, Matthew P, Reeves, Sarah L, Cooper, William O, Attell, Brandon K, Strouse, John J, Takemoto, Clifford M, Kanter, Julie, Latta, Krista, Plaxco, Allison P, Davis, Robert L, Hatch, Daniel, Reyes, Camila, Dombkowski, Kevin, Snyder, Angela, Paulukonis, Susan, Singh, Ashima, Kayle, Mariam |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10224800/ https://www.ncbi.nlm.nih.gov/pubmed/37252051 http://dx.doi.org/10.1093/jamiaopen/ooad036 |
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