Real-world analysis of healthcare resource utilization by patients with X-linked myotubular myopathy (XLMTM) in the United States

BACKGROUND: X-linked myotubular myopathy (XLMTM) is a rare, life-threatening congenital myopathy with multisystem involvement, often requiring invasive ventilator support, gastrostomy tube feeding, and wheelchair use. Understanding healthcare resource utilization in patients with XLMTM is important...

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Detalles Bibliográficos
Autores principales: Graham, Robert J., Darras, Basil T., Haselkorn, Tmirah, Fisher, Dan, Genetti, Casie A., Miller, Weston, Beggs, Alan H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10242920/
https://www.ncbi.nlm.nih.gov/pubmed/37280644
http://dx.doi.org/10.1186/s13023-023-02733-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10242920/
https://www.ncbi.nlm.nih.gov/pubmed/37280644
http://dx.doi.org/10.1186/s13023-023-02733-2

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