Young XLH Patients-Reported Experience with a Supportive Care Program

PURPOSE: X-linked hypophosphatemia (XLH) is a rare, chronic, genetic condition characterized by renal phosphate wasting and abnormal bone and teeth mineralization. It represents a challenging and multifaceted disease that causes wide-ranging impacts on patients’ lives. In this context, a scientific...

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Detalles Bibliográficos
Autores principales: Rothenbuhler, Anya, Gueorguieva, Iva, Lichtenberger-Geslin, Lydia, Audrain, Christelle, Soskin, Sylvie, Bensignor, Candace, Rossignol, Sylvie, Bertholet-Thomas, Aurélia, Naudeau, Lorelei, Bacchetta, Justine, Linglart, Agnès
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2023
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10263015/
https://www.ncbi.nlm.nih.gov/pubmed/37325587
http://dx.doi.org/10.2147/PPA.S391025

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10263015/
https://www.ncbi.nlm.nih.gov/pubmed/37325587
http://dx.doi.org/10.2147/PPA.S391025

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