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Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory

The coming-into-force of the EU General Data Protection Regulation (GDPR) is a watershed moment in the legal recognition of enforceable rights to informational self-determination. The rapid evolution of legal requirements applicable to data use, however, has the potential to outstrip the capabilitie...

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Detalles Bibliográficos
Autores principales: Bernier, Alexander, Molnár-Gábor, Fruzsina, Knoppers, Bartha M., Borry, Pascal, Cesar, Priscilla M. D. G., Devriendt, Thijs, Goisauf, Melanie, Murtagh, Madeleine, Jiménez, Pilar Nicolás, Recuero, Mikel, Rial-Sebbag, Emmanuelle, Shabani, Mahsa, Wilson, Rebecca C., Zaccagnini, Davide, Maxwell, Lauren
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10267538/
https://www.ncbi.nlm.nih.gov/pubmed/37322132
http://dx.doi.org/10.1038/s41431-023-01403-y