Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations – a qualitative interview study

BACKGROUND: During the COVID-19 pandemic people affected by rare diseases (RD) or caregiver of affected children have faced additional challenges. The pandemic has affected physical and mental health, social life and has led to financial consequences. Our objectives were to identify the impact of CO...

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Detalles Bibliográficos
Autores principales: Zybarth, David, Brandt, Maja, Mundlos, Christine, Inhestern, Laura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10283205/
https://www.ncbi.nlm.nih.gov/pubmed/37344904
http://dx.doi.org/10.1186/s13023-023-02771-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10283205/
https://www.ncbi.nlm.nih.gov/pubmed/37344904
http://dx.doi.org/10.1186/s13023-023-02771-w

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