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Data-driven sudden cardiac arrest research in Europe: Experts’ perspectives on ethical challenges and governance strategies

BACKGROUND: Observational studies using large-scale databases and biobanks help improve prevention and treatment of sudden cardiac arrest (SCA) but the lack of guidance on data protection issues in this setting may harm patients’ rights and the research enterprise itself. This qualitative study expl...

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Detalles Bibliográficos
Autores principales: Bak, Marieke A.R., Vroonland, Jelle C.H., Blom, Marieke T., Damjanovic, Domagoj, Willems, Dick L., Tan, Hanno L., Corrette Ploem, M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10285638/
https://www.ncbi.nlm.nih.gov/pubmed/37363125
http://dx.doi.org/10.1016/j.resplu.2023.100414