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Data-driven sudden cardiac arrest research in Europe: Experts’ perspectives on ethical challenges and governance strategies
BACKGROUND: Observational studies using large-scale databases and biobanks help improve prevention and treatment of sudden cardiac arrest (SCA) but the lack of guidance on data protection issues in this setting may harm patients’ rights and the research enterprise itself. This qualitative study expl...
Autores principales: | Bak, Marieke A.R., Vroonland, Jelle C.H., Blom, Marieke T., Damjanovic, Domagoj, Willems, Dick L., Tan, Hanno L., Corrette Ploem, M. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2023
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10285638/ https://www.ncbi.nlm.nih.gov/pubmed/37363125 http://dx.doi.org/10.1016/j.resplu.2023.100414 |
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